Tag Archives: ekg

ReCycle

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Tomorrow begins a new 28 day cycle (#2) for me in my clinical trial. I’ll be treated to a full day of hourly blood draws and ekg tests. It’s really not that bad; the blood draws come from an IV and the ekgs don’t hurt but it’ll still be a long 9-10 hour day at the Sarah Cannon DDU. They’re taking really great care of me and with any luck, we’ll get to see the Bread Lady again. Sheila’s already craving her goodies! ­čÖé

I also sent in my application today for Camp Bluebird; a special twice a year retreat for adult cancer patients. I am really looking forward to meeting and spending time with others who are also sharing this journey.

Hey, where are the side effects?

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I should subtitle this post “Is that it???”. So here we are at day 3 of treatment. I’m on my own, taking the IPI-145 drug twice a day for the next five days. So far, I’ve experienced a total of zero side effects. No nausea, no vomiting, no diahrea, no chills, no sweats. Nothing at all. I had to sign a long list of consent forms to participate in the trial. Most of the potential side effects listed on the form I actually already had from the CLL itself. At this point, it’s looking like I’m in for an uneventful next month (28 day treatment cycle) until the next all-day EKG and blood draw session back at the clinic.

I want to give a huge round of Kudos to all the caring nurses & staff at Sarah Cannon Research Institute & Tennessee Oncology in Nashville. I could not have asked for better, more compassionate care in what could have been a very┬áscary and dehumanizing past two weeks. The clinic setting seems more like a hotel than hospital. The patient lounge is nicer and better stocked than what I’ve seen in most hotels. Thank you all!

Patient Lounge

Survived day one

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So, what’s it like to participate in a clinical trial for cancer? If today is any indication,┬á lots of blood draws (hourly for 8 hours), lots of interaction with clinicians and lots of EKG tests (hourly). I have to followup on day two with more labs and then weekly return visits. Even going through the months leading up to Sheila’s transplants, the outpatient visits weren’t this intense. I have a feeling that I will be very well cared for throughout this trial process. Hopefully this new drug can fully deliver on its incredible potential for treatment efficacy.